Sorry All-
I know it's been a while again since my last post but as I've said before no news in this case is good news!!
We did meet with Ret's oncologist on 5/12 and again happy to report no real new developments. It was discovered however that the transplant probably will happen more around September than July as we originally thought. That development came about based on the doctors patient history dealing with this condition, not any real issues. So in most cases it seems that the person needs to be on the drug therapy longer than the prescribed 4 months. There certainly pro's and con's to that but safe to say "it is what it is" and we'll deal with that.
Oh, the reason why I'm late again Bob, Sharon and Pat is that we're back in Philly. We came back for a wedding and are staying to catch up with some great friends. Actually for those of you who have one of the "Expect Miracles" bracelets that Ret has, the friends we're staying with Mark and Mary are where those came from. Anyway we'll be home for the M-Day weekend at the river.
Thanks again to all.
Love,
Ret and Jack
Tuesday, May 19, 2009
Monday, May 4, 2009
Trying to Keep Up
Sorry again I know it's been two weeks since my last post, but in many ways that's a good thing.
I will tell you when we get close to the transplant part of our journey I'll be posting much more often, it will be a very critical time as well as a time with the most information that I'm sure all of you will concerned about.
As I mentioned last time, we were working on and the doc did reduce the dosage of the pain med's that Ret is on, again because the side effects were such that it was difficult for her to manage her day as close to normal as she wanted. While we were correct in assuming that the side effects may change for the better, we were unprepared for the return of the constant pain. That said Ret has decided that the day to day side effects are easier to live with than the constant pain, so we're back on the heavy duty stuff. With that, I'm starting my own garage pharmacy over here with the surplus med's we have on hand to help with the finances! Kidding, kidding I'm just kidding, that's just what we need me in jail and Ret in the hospital. Alright I know what some of you are thinking, that's where I should be or maybe should have been anyway...........too bad I'm on the loose.
Funny story. As in my last post I mentioned this is the only way a significant number of you keep up with Rets condition and for you others just to hang in there through my rants. So here's the story. I post on Tuesday then head to Stanwood on Wednesday to take my step mom to the doc for her new ankle brace. I'm at TT for lunch, that's Taco Time for you non-aficionados, and run into Sharon Hanson a close high school friend of ours. First she asks what I'm doing there, feel like I'm banned from my own home town, I tell her then she asks how Ret is doing because shes gone to the blog and I haven't posted in while, I tell her I just posted the night before and not to worry Ret's just fine. Then I get home tell Ret the story and she tells me Bob Burns had sent her a message that day on her facebook page asking how she's doing because I hadn't posted lately and he wanted to know. Bob, Sharon sorry I'll try and do a better job.
It just goes to show you people pay more attention than you think....................................and for that Ret and I are truly grateful!!!
Love,
Ret & Jack
I will tell you when we get close to the transplant part of our journey I'll be posting much more often, it will be a very critical time as well as a time with the most information that I'm sure all of you will concerned about.
As I mentioned last time, we were working on and the doc did reduce the dosage of the pain med's that Ret is on, again because the side effects were such that it was difficult for her to manage her day as close to normal as she wanted. While we were correct in assuming that the side effects may change for the better, we were unprepared for the return of the constant pain. That said Ret has decided that the day to day side effects are easier to live with than the constant pain, so we're back on the heavy duty stuff. With that, I'm starting my own garage pharmacy over here with the surplus med's we have on hand to help with the finances! Kidding, kidding I'm just kidding, that's just what we need me in jail and Ret in the hospital. Alright I know what some of you are thinking, that's where I should be or maybe should have been anyway...........too bad I'm on the loose.
Funny story. As in my last post I mentioned this is the only way a significant number of you keep up with Rets condition and for you others just to hang in there through my rants. So here's the story. I post on Tuesday then head to Stanwood on Wednesday to take my step mom to the doc for her new ankle brace. I'm at TT for lunch, that's Taco Time for you non-aficionados, and run into Sharon Hanson a close high school friend of ours. First she asks what I'm doing there, feel like I'm banned from my own home town, I tell her then she asks how Ret is doing because shes gone to the blog and I haven't posted in while, I tell her I just posted the night before and not to worry Ret's just fine. Then I get home tell Ret the story and she tells me Bob Burns had sent her a message that day on her facebook page asking how she's doing because I hadn't posted lately and he wanted to know. Bob, Sharon sorry I'll try and do a better job.
It just goes to show you people pay more attention than you think....................................and for that Ret and I are truly grateful!!!
Love,
Ret & Jack
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